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singlewhitekidney

One 30-something's adventure with renal cell carcinoma

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Tag: targeted therapy

Turn The Page
Treatment · Victory

Turn The Page

April 1, 2020 singlewhitekidney2 Comments

It’s been 3 years and six months since I started Cabometyx. The medication that not only saved my life, but gave me time I had no right to expect or deserve, if you asked papillary renal cell carcinoma. I joined the PAPMET clinical trial as one of its very first patients, and was randomly assigned… Continue reading Turn The Page

Vaccinating in the name of…
Grief · Musings

Vaccinating in the name of…

February 23, 2019February 23, 2019 singlewhitekidney1 Comment

No disrespect intended to Rage Against the Machine, but I need to get this off my chest, because I have been stewing on this since I got the call a month ago today from my aunt that I needed to get down to Baton Rouge as soon as possible. I literally dropped everything in my life,… Continue reading Vaccinating in the name of…

Carry On Breathing
Musings · Treatment

Carry On Breathing

November 10, 2018November 10, 2018 singlewhitekidney2 Comments

Every 3 months, it’s the same routine. Get the IV started. Flush the saline in, giving that nauseating, mildly reminiscent smell through my bones of a salty day on the Gulf. Surrender myself on the table again, offering my body up to the God of Science Experiments. Stare at the ceiling, contemplating the results that… Continue reading Carry On Breathing

Deux.
Victory

Deux.

May 10, 2018 singlewhitekidney1 Comment

Year two. Still standing. Still here. Back to my new normal so much, I only stopped and thought to myself a few times, “Wow. Just think where I was two years ago today.” Another notch in the belt. Dr. V and my research nurse were both horrified and laughing when I told them today was… Continue reading Deux.

Cabo Hair, Part II
Treatment

Cabo Hair, Part II

March 11, 2018March 11, 2018 singlewhitekidney2 Comments

I made a scary decision this week. OK, that’s being a little trivial. I’ve made far scarier decisions in the past 22 months, you know, like treatment plans and surgery decisions and writing out my will and my wishes for what I’d want if the worst happened. So yeah, nothing on that scale, by far.… Continue reading Cabo Hair, Part II

Survivor’s Guilt
Musings · Treatment

Survivor’s Guilt

November 6, 2017November 6, 2017 singlewhitekidney1 Comment

“If they say Who cares if one more light goes out? In a sky of a million stars It flickers, flickers Who cares when someone’s time runs out? If a moment is all we are We’re quicker, quicker Who cares if one more light goes out? Well I do” – Linkin Park, “One More Light”… Continue reading Survivor’s Guilt

Survivor.
Victory

Survivor.

August 28, 2017August 28, 2017 singlewhitekidney9 Comments

I have dreamed of writing this post for so long that I don’t even quite know what to say. You would think I would have put more thought into this, but I didn’t want to get too far ahead of myself. I was worried if I mentally wrote it, I’d jinx myself. Hope is a… Continue reading Survivor.

Free Bird
Diagnosis · Musings · Treatment

Free Bird

June 7, 2017 singlewhitekidney2 Comments

“She is clothed with strength and dignity, and she laughs without fear of the future.” – Proverbs 31:25 (NLT) Welp. Tomorrow is Annual Birthed a Kidney Day. June 8 feels rather traumatic to me. First of all, I’ll admit it. I thought I was a big ole wimp. The idea then of going through this… Continue reading Free Bird

One Is The Loneliest Number
Treatment

One Is The Loneliest Number

March 22, 2017 singlewhitekidneyLeave a comment

Anyone else around here a Three Dog Night fan? No? Just me? If you are, then my latest scan results would explain why I’ve been humming one of their hit songs lately. Are you ready for this? No, really. Are you sitting down? I’ll give you a minute. My March scan showed I have only… Continue reading One Is The Loneliest Number

Back In The Saddle
Treatment

Back In The Saddle

February 11, 2017 singlewhitekidneyLeave a comment

Well, my week break came and went quickly. I’m back on Cabo at 40 mg. Happy to be back on the medication, as I’m hoping for continued good results. However, I’m drained. I counted yesterday, and I’m now on three different medications to manage the side effects of the Cabo. In addition to the blood… Continue reading Back In The Saddle

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About Me

32 year old kidney cancer patient. Diagnosed at 29. Wife, mom, writer, marketer, cat fanatic. Loves the beach, music, traveling, and not having cancer.

Previous Ramblings

  • January 2021
  • October 2020
  • August 2020
  • July 2020
  • May 2020
  • April 2020
  • December 2019
  • July 2019
  • May 2019
  • February 2019
  • November 2018
  • July 2018
  • May 2018
  • April 2018
  • March 2018
  • November 2017
  • August 2017
  • June 2017
  • May 2017
  • March 2017
  • February 2017
  • January 2017
  • December 2016
  • November 2016
  • October 2016
  • September 2016
  • August 2016
  • July 2016
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