The last few weeks have been a roller coaster to say the least. I’ve always been brutally honest here, and I don’t intend to stop now. When I stopped Cabo in April, I knew it would be a shock for my body. I had lasted three and a half years on the drug, which isn’t… Continue reading The Gift That Keeps On Giving
In August 2005, as I was about to start college at Loyola University in New Orleans, a little thunderstorm made its way through the city and wreaked havoc on my life. You may have heard of it – Hurricane Katrina. For years after Katrina, I looked at many things in my life as pre-K and… Continue reading Life Post-Hurricane
I made a scary decision this week. OK, that’s being a little trivial. I’ve made far scarier decisions in the past 22 months, you know, like treatment plans and surgery decisions and writing out my will and my wishes for what I’d want if the worst happened. So yeah, nothing on that scale, by far.… Continue reading Cabo Hair, Part II
“If they say Who cares if one more light goes out? In a sky of a million stars It flickers, flickers Who cares when someone’s time runs out? If a moment is all we are We’re quicker, quicker Who cares if one more light goes out? Well I do” – Linkin Park, “One More Light”… Continue reading Survivor’s Guilt
I have dreamed of writing this post for so long that I don’t even quite know what to say. You would think I would have put more thought into this, but I didn’t want to get too far ahead of myself. I was worried if I mentally wrote it, I’d jinx myself. Hope is a… Continue reading Survivor.
My one year mark is approaching very quickly. Next week, as a matter of fact. I’ve been all over the place emotionally. I’m grateful, of course. Over 25 percent of metastatic kidney cancer patients don’t even make it this far. So you know, my perception of gratitude is skewed these days. But there’s been a lot… Continue reading Cancer is Hell
Anyone else around here a Three Dog Night fan? No? Just me? If you are, then my latest scan results would explain why I’ve been humming one of their hit songs lately. Are you ready for this? No, really. Are you sitting down? I’ll give you a minute. My March scan showed I have only… Continue reading One Is The Loneliest Number
Well, my week break came and went quickly. I’m back on Cabo at 40 mg. Happy to be back on the medication, as I’m hoping for continued good results. However, I’m drained. I counted yesterday, and I’m now on three different medications to manage the side effects of the Cabo. In addition to the blood… Continue reading Back In The Saddle
As I predicted, Dr. V decided it was time for me to take a break on Cabozantinib. I’ve been on 60 mg consistently since beginning the clinical trial in September, so he said he was “surprised it’s taken this long” for me to get to the point of needing a break. The medication’s toxicity builds… Continue reading Cabo on Vacation
I am an impatient person. Alright, those of you who know me in real life can stop laughing now. I know I’m stating the obvious, but the more this cancer thing lingers on, the more apparent it is to me that I am (1) incredibly stubborn and (2) incredibly impatient. It’s been a little under… Continue reading One Spoon at a Time (or why I sometimes look fine but feel awful)
singlewhitekidney 