HLRCC and its connection to kidney cancer was discovered in 2002. I was a freshman in high school. Roughly 10% of patients with HLRCC will develop kidney cancer. I had just turned 29 when I joined these ranks in 2016. If you are stage one upon diagnosis for any type of kidney cancer, you have… Continue reading cinq
I come from resilient people. My maternal ancestors were forced out of Nova Scotia as part of Le Grand Derangement, when the British “shipped our Acadian ancestors down here to die,” as my mother used to say. She wasn’t wrong. Le Grand Derangement was an act of ethnic cleansing, a genocide. It’s estimated that half… Continue reading Ça c’est bon, sha.
My apologies to St. Dymphna. She is actually the patron saint of depression and anxiety. But, I might be giving her a run for her money these days. COVID isn’t helping, but it’s not just about a viral infection that could kill me, what with the damage to my lungs from the tumors that grew… Continue reading Laura, The Patron Saint of Scanxiety.
The last few weeks have been a roller coaster to say the least. I’ve always been brutally honest here, and I don’t intend to stop now. When I stopped Cabo in April, I knew it would be a shock for my body. I had lasted three and a half years on the drug, which isn’t… Continue reading The Gift That Keeps On Giving
Four years ago today, my entire world collapsed around me as I sobbed and screamed from a hospital bed in the middle of an ER as a doctor with a forlorn look on his face delivered the news that I had a massive tumor that had taken over my right kidney. I didn’t understand then… Continue reading Quatre
“Oh, let’s go back to the start.” – Coldplay, “The Scientist” I was 17 years old the first time I stepped foot in Washington, DC. I had barely left the state of Louisiana before then; it was, after all, the first time I had ever left the South. Bright-eyed, with the world set before me,… Continue reading Full Circle
No disrespect intended to Rage Against the Machine, but I need to get this off my chest, because I have been stewing on this since I got the call a month ago today from my aunt that I needed to get down to Baton Rouge as soon as possible. I literally dropped everything in my life,… Continue reading Vaccinating in the name of…
Every 3 months, it’s the same routine. Get the IV started. Flush the saline in, giving that nauseating, mildly reminiscent smell through my bones of a salty day on the Gulf. Surrender myself on the table again, offering my body up to the God of Science Experiments. Stare at the ceiling, contemplating the results that… Continue reading Carry On Breathing
In August 2005, as I was about to start college at Loyola University in New Orleans, a little thunderstorm made its way through the city and wreaked havoc on my life. You may have heard of it – Hurricane Katrina. For years after Katrina, I looked at many things in my life as pre-K and… Continue reading Life Post-Hurricane
Year two. Still standing. Still here. Back to my new normal so much, I only stopped and thought to myself a few times, “Wow. Just think where I was two years ago today.” Another notch in the belt. Dr. V and my research nurse were both horrified and laughing when I told them today was… Continue reading Deux.