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singlewhitekidney

One 30-something's adventure with renal cell carcinoma

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Tag: Clinical trials

Ça c’est bon, sha.
Post-Treatment · Victory

Ça c’est bon, sha.

August 2, 2020 singlewhitekidneyLeave a comment

I come from resilient people. My maternal ancestors were forced out of Nova Scotia as part of Le Grand Derangement, when the British “shipped our Acadian ancestors down here to die,” as my mother used to say. She wasn’t wrong. Le Grand Derangement was an act of ethnic cleansing, a genocide. It’s estimated that half… Continue reading Ça c’est bon, sha.

Turn The Page
Treatment · Victory

Turn The Page

April 1, 2020 singlewhitekidney2 Comments

It’s been 3 years and six months since I started Cabometyx. The medication that not only saved my life, but gave me time I had no right to expect or deserve, if you asked papillary renal cell carcinoma. I joined the PAPMET clinical trial as one of its very first patients, and was randomly assigned… Continue reading Turn The Page

The Rougarou
Treatment

The Rougarou

December 24, 2019 singlewhitekidney1 Comment

‘Twas a few days before Thanksgiving, and a boogeyman was lurking in my chest. What, that’s not how this story goes? It WAS the Saturday before Thanksgiving though as I lay in bed watching TV with my husband when I suddenly had sharp pains in my left rib. “That was weird,” I thought. I actually… Continue reading The Rougarou

Full Circle
Musings · Treatment

Full Circle

December 4, 2019 singlewhitekidney2 Comments

“Oh, let’s go back to the start.” – Coldplay, “The Scientist” I was 17 years old the first time I stepped foot in Washington, DC. I had barely left the state of Louisiana before then; it was, after all, the first time I had ever left the South. Bright-eyed, with the world set before me,… Continue reading Full Circle

Deux.
Victory

Deux.

May 10, 2018 singlewhitekidney1 Comment

Year two. Still standing. Still here. Back to my new normal so much, I only stopped and thought to myself a few times, “Wow. Just think where I was two years ago today.” Another notch in the belt. Dr. V and my research nurse were both horrified and laughing when I told them today was… Continue reading Deux.

Cabo Hair, Part II
Treatment

Cabo Hair, Part II

March 11, 2018March 11, 2018 singlewhitekidney2 Comments

I made a scary decision this week. OK, that’s being a little trivial. I’ve made far scarier decisions in the past 22 months, you know, like treatment plans and surgery decisions and writing out my will and my wishes for what I’d want if the worst happened. So yeah, nothing on that scale, by far.… Continue reading Cabo Hair, Part II

Survivor’s Guilt
Musings · Treatment

Survivor’s Guilt

November 6, 2017November 6, 2017 singlewhitekidney1 Comment

“If they say Who cares if one more light goes out? In a sky of a million stars It flickers, flickers Who cares when someone’s time runs out? If a moment is all we are We’re quicker, quicker Who cares if one more light goes out? Well I do” – Linkin Park, “One More Light”… Continue reading Survivor’s Guilt

Survivor.
Victory

Survivor.

August 28, 2017August 28, 2017 singlewhitekidney9 Comments

I have dreamed of writing this post for so long that I don’t even quite know what to say. You would think I would have put more thought into this, but I didn’t want to get too far ahead of myself. I was worried if I mentally wrote it, I’d jinx myself. Hope is a… Continue reading Survivor.

Free Bird
Diagnosis · Musings · Treatment

Free Bird

June 7, 2017 singlewhitekidney2 Comments

“She is clothed with strength and dignity, and she laughs without fear of the future.” – Proverbs 31:25 (NLT) Welp. Tomorrow is Annual Birthed a Kidney Day. June 8 feels rather traumatic to me. First of all, I’ll admit it. I thought I was a big ole wimp. The idea then of going through this… Continue reading Free Bird

One Is The Loneliest Number
Treatment

One Is The Loneliest Number

March 22, 2017 singlewhitekidneyLeave a comment

Anyone else around here a Three Dog Night fan? No? Just me? If you are, then my latest scan results would explain why I’ve been humming one of their hit songs lately. Are you ready for this? No, really. Are you sitting down? I’ll give you a minute. My March scan showed I have only… Continue reading One Is The Loneliest Number

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About Me

32 year old kidney cancer patient. Diagnosed at 29. Wife, mom, writer, marketer, cat fanatic. Loves the beach, music, traveling, and not having cancer.

Previous Ramblings

  • January 2021
  • October 2020
  • August 2020
  • July 2020
  • May 2020
  • April 2020
  • December 2019
  • July 2019
  • May 2019
  • February 2019
  • November 2018
  • July 2018
  • May 2018
  • April 2018
  • March 2018
  • November 2017
  • August 2017
  • June 2017
  • May 2017
  • March 2017
  • February 2017
  • January 2017
  • December 2016
  • November 2016
  • October 2016
  • September 2016
  • August 2016
  • July 2016
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